Ep. 150: Owning Crohn’s: A Story of Stigma, Strength and Advocacy

Well Beyond Medicine: The Nemours Children's Health Podcast

Tina Aswani-Omprakash began experiencing symptoms as a child – joint pain, eye inflammation and digestive issues – but no one connected them. Without a diagnosis, health insurance, or support due to the cultural stigma surrounding inflammatory bowel disease (IBD) and Crohn’s disease, Tina endured a long and painful journey to understand her own body.

Today, she’s a patient advocate, storyteller and CEO of the South Asian IBD Alliance (SAIA), using her lived experience to support others – especially young people and families – facing similar challenges.

Own Your Crohn’s
South Asian IBD Alliance (SAIA)

Guest:
Tina Aswani-Omprakash, MPH, CEO, South Asian IBD Alliance (SAIA)

Host/Producer: Carol Vassar


Views expressed by guests do not necessarily reflect the views of the host or management. 

Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

More description

Tina Aswani-Omprakash began experiencing symptoms as a child – joint pain, eye inflammation and digestive issues – but no one connected them. Without a diagnosis, health insurance, or support due to the cultural stigma surrounding inflammatory bowel disease (IBD) and Crohn’s disease, Tina endured a long and painful journey to understand her own body.

Today, she’s a patient advocate, storyteller and CEO of the South Asian IBD Alliance (SAIA), using her lived experience to support others – especially young people and families – facing similar challenges.

Own Your Crohn’s
South Asian IBD Alliance (SAIA)

Guest:
Tina Aswani-Omprakash, MPH, CEO, South Asian IBD Alliance (SAIA)

Host/Producer: Carol Vassar


Views expressed by guests do not necessarily reflect the views of the host or management. 

Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

2025-08-18 32 min Transcript
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